Informed consent

Informed consent can be said to have been given if it is based upon a clear appreciation and understanding of the facts, implications, and future consequences of an action. In order to give informed consent, the individual concerned must have adequate reasoning faculties and be in possession of all relevant facts at the time consent is given. Impairments to reasoning and judgment which may make it impossible for someone to give informed consent include such factors as basic intellectual or emotional immaturity, severe learning disability, severe mental illness, intoxication, severe sleep deprivation, dementia, or being in a coma.

Oral historians need to focus not merely on gaining informed consent to enable the recording to begin, but should also inform participants about how the recording will be stored, preserved and used in the long-term, and how confidentiality, where promised, will be maintained. To ensure that consent is informed, consent must be freely given with sufficient information provided on all aspects of participation and data use and reuse. There must be active communication between the parties. Consent must never be inferred from a non-response to a communication such as a letter.

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