Informed consent

Oral history operates within a context of informed consent which can be said to have been given if it is based upon a clear appreciation and understanding of the facts, implications, and future consequences of an action. In order to give informed consent, the individual concerned must have adequate reasoning faculties and be in possession of all relevant facts at the time consent is given. Impairments to reasoning and judgment which may make it impossible for someone to give informed consent include such factors as basic intellectual or emotional immaturity, severe learning disability, severe mental illness, intoxication, severe sleep deprivation, dementia, or being in a coma.

Oral historians need to focus not merely on gaining informed consent to enable the recording to begin, but should also inform participants about how the recording will be stored, preserved and used in the long-term, and how confidentiality, where promised, will be maintained. To ensure that consent is informed, consent must be freely given with sufficient information provided on all aspects of participation and data use and reuse. There must be active communication between the parties. Consent must never be inferred from a non-response to a communication such as a letter.

It is important to recognise that this notion of ‘informed consent’ that has underpinned oral history ethical best practice (and much other research) is different from the GDPR definition of the term ‘consent’. Interviewees still need to be fully ‘informed’ about, agree to, and be able to withdraw from the process which they are participating in. This can be achieved by using a pre-interview participation agreement.

Consent is only one of the legal bases available under GDPR to legitimise the processing of personal data, such as the making, storage and use of an oral history interview. You should be certain of your legal basis before beginning the interview, and the interviewee should be informed of the basis on which the recording is being made. Note that the legal basis that you choose to use determines which of the individual’s rights and which exemptions may apply to the activity.

You should also be aware that, when relying on consent for the publication or dissemination of an archive recording, you will also need the consent of every person who is identifiable from the interview, not just the interviewee, and this may be prohibitively difficult.

If you do choose to use consent as your legal basis, one of the key changes under GDPR is that consent to the use of personal data must be active (no pre-ticked boxes), clear, affirmative and distinguishable from other matters, and provided in an intelligible and easily accessible form, using clear and plain language. Consent needs to cover both the holding of personal data and its further processing (use).

OHS advice therefore (drawing on British Library policy) is that for the processing of personal data for archival purposes a data controller  should normally rely on the legal basis of ‘the performance of a task carried out in the public interest’ where legally able to do so, or on ‘legitimate interests’ where they are not. The processing of Special Category Data (previously called ‘sensitive personal data’: see below) requires an additional legal basis. For the processing of Special Category Data for archival purposes, a Data Controller should rely on Section 4(a) of Schedule 1 of the Data Protection Act 2018 – ‘necessary for archiving purposes… in the public interest’.

One of the characteristics of consent under GDPR is that it can be withdrawn at any time. If consent is withdrawn then you cannot substitute another legal basis to continue processing that data. This is why it is advisable to use one of the other legal bases other than consent when creating material for a permanent historic archive, hence the OHS recommendation above.


Research Ethics Committees (RECS)

University ethics committee vary in their practice but each is likely to have a code of practice which will indicate what ethical standards are required. An example of a flowchart which shows the stages to obtaining ethical review at a higher education institution is here. At a basic level, projects are likely to be expected to produce their research plan including a rationale, together with examples of consent forms or recording agreements, as well as information sheets. They are also likely to indicate awareness of such issues as risk assessment, deposit agreements and an indication that in carrying out the work the contribution of others and use of relevant source materials is acknowledged. An example of a REC application form (from Royal Holloway, University of London) is here.

The UK Data Archive has produced helpful guidance for researchers when approaching and working with RECS here.


‘Surroundings’ – an artwork by Ivan Riches

 

 

‘Surroundings’ is an artwork initiated, devised, created and delivered by Ivan Riches, a 360° image projection with a voice soundscape compiled of participant’s experience of their relationships to their surroundings, from locations in Southwark London, North Devon and Bavaria Germany. One version of this artwork is for delivery as an installation with musicians creating a live supporting accompaniment in a gallery setting. The other version of the artwork is without live music, available for wider public viewing on YouTube for smartphones, tablets, 360° headsets and computer scrolling. 

There were 2 live installations/performances of improvised music/soundscapes with projected imagery, in direct response to recorded interviews, rich in feeling & intensity, creating live immersive experiences where the audience is surrounded by voices, sound textures & images.

Surroundings 360° (3 locations)’ Artwork by Ivan Riches 2019
This artwork part of the ‘Surroundings Project’ consists of voices recorded from interviews in Southwark London, North Devon & locations in Bavaria Germany, alongside mixed media imagery in 360° format. The Plough Arts Centre 26th June 2019

https://youtu.be/IK5Rrq3OTfg

Surroundings (1 location)’ Artwork by Ivan Riches 2019
This artwork part of the ‘Surroundings Project’ consists of voices recorded from interviews in Southwark London.
The South London Gallery 24th April 2019

https://youtu.be/JthhBOb4AM8 

Musicians for the live installation/performance:
Jo-anne Cox
Dee Fry
Ivan Riches 
Zack De Santos

Read Colin Hambrook’s article ‘Surroundings – a journey into the known’ at Disability Arts Online: 
http://disabilityarts.online/magazine/opinion/surroundings-a-journey-into-the-known/

‘Surroundings: Stories of Home’ with transcripts of the Southwark London interviews is available at: https://disabilityarts.online/magazine/opinion/ivan-riches-surroundings-a-meaningful-evocation-of-the-human-spirit/ 

Read more about the project and its development via Ivan’s blogs at Disability Arts Online:
Surroundings Blog No 1
Surroundings Blog No 2
Surroundings Blog No 3

Surroundings Blog No 4
Surroundings Blog No 5
Surroundings Blog No 6

 

 

Thank you to: 
The project participants for contributing their voices

Partners and Sponsors:
South London Gallery
Claudius Vergho
Freewheeling
Plough Art Centre
Dr Jürgen Müller-Hohagen
Disability Arts Online

And Thank you to:
Fran Stanley for help and support
Willem Riches for help and support and some extra photography in Rosenheim Germany
Simon Puris for filming at the South London Gallery

All Visual Artwork & Film Coypright (C) Ivan Riches 2019
All Music Coypright (C) Ivan Riches 2019


National Life Stories Goodison Fellowship 2020-21

 

Got an idea for sharing oral histories in the public domain? Apply for the NLS Goodison Fellowship to help fund it!

National Life Stories, the oral history charitable trust based at the British Library, is pleased to announce that applications are now open for the National Life Stories Goodison Fellowship 2020-21. The aim of the Fellowship is to increase public knowledge and awareness of oral history, particularly of the National Life Stories collections. The award of £5,000 is open anyone resident in the United Kingdom who wishes to use the National Life Stories oral history collections to reflect on life stories and memory, and share the results of their research in the public domain. Past Fellows have used the award to stage an exhibition, write a play script, research a book, write scholarly, online and journal articles and produce a series of radio programmes.

Applicants can draw on any of the NLS collections, but proposals using material from one or more of the following collections will be particularly welcomed:
Crafts Lives – over 160 life story interviews with British studio crafts makers recorded over the past 20 years
Architects’ Lives – over 150 recordings with pioneering UK architects recorded since 1989
An Oral History of Theatre Design – 30 interviews with prominent theatre designers.

The National Life Stories Goodison Fellowship provides the recipient the time and space to listen in depth to oral history material from across the collections. The award holder will become the Goodison Fellow for a period of three to nine months, subject to agreement with the Awarding Panel. The Fellowship must commence in the period 1 February 2020 – 1 November 2020.

For more information and application details visit https://www.bl.uk/nls/fellowships

The closing date for applications is midnight on Monday 28 October 2019.

Post Duration: 3-9 months(months)
Salary: £5,000
.